Anything is possible. You can be told that you have a 90-percent chance or a 50-percent chance or a 1-percent chance, but you have to believe, and you have to FIGHT



Lance Armstrong

Tuesday, January 11, 2011

All good!

Ok so there was a little mix up, her old hemotocrit was 53-54%, not 47.8%. So now that its 53.2% he's saying it's about the same so no need for oxygen as of now. We are getting a o2 monitor so we can watch her this week at home, then when we go on Tues to see Dr Menon we will have an accurate number for him. With her ferritin being so low Dr Rose thinks she may need to be on an iron supplement, but said to talk with Dr Menon on Tues and see what he thinks. But for now, nothing but monitoring her o2 sat for the week! NO OXYGEN! Yay!!

**FROM WHAT I UNDERSTAND**with her oxygen being all over the place and not knowing what it was for sure, we did the hemotocrit draw to see if it was going up significantly, if it had, it would mean her sats have been consistently dropping since the last draw, which was last March, because it stayed the same it probably means her oxygen has not been that much lower than normal, we are just getting inaccurate readings for whatever reason. Having the monitor at home will be nice because she will be calm and i can also see where she's at when she's asleep.

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This is Paul Cardell's CHD video. (I put it at the bottom of the blog, it fits best there..) It is shocking how many people, young and old are dealing with the same type of things we are. Take 9 minutes and watch, these are some of the cutest babies i've seen!! Libbi is about 6 and a half minutes into the video. (make sure you scroll down and pause my music playlist so you can hear his music, he is a pianist, it is very pretty!)

Paul Cardell CHD Video