1 month ago
Wednesday, June 30, 2010
Don't break my heart
There's a song, a pop song, that says 'please don't break break break break break my heart'... I'm working on finding who sings it, but anyway, it was on today and Jerzi says "Mom, this is Libbi's song huh?" She's so funny that she was even listening to the song, let alone thinking about Libbi. I had to journal that, i thought it was too cute. Then we were at Lagoon and there was a bear with a stitched heart on his belly and Koy and Jerzi both just HAD to win it for Libbi! Well, they did, and she loves it :) Sweet kids! update 7/19/10 i found out that Taio Cruz sings this song.
Tuesday, June 29, 2010
15 month lil update
I am growing so good and getting very big and sassy! The doctors think it's amazing how well i am doing, i am doing everything a 'normal' 15 month old should be doing. Walking, talking a little and being a kid!
Some other things i am doing...
Watching fireworks with my friends
Smashing my face in the trampoline net
Jumping on the trampoline
Some other things i am doing...
Watching fireworks with my friends
Smashing my face in the trampoline net
Jumping on the trampolineSunday, June 27, 2010
Slow Blogger!
Ok so i have like a million blog posts i need to do but my computer and/or blogger is sooooo slow at downloading the pictures! Does anyone have any suggestions? I don't know who reads this, but if you do and you have any idea how to upload faster PLEASE share! Until then....
Tuesday, June 1, 2010
June 1 2010 sedated echo
Today went very well, they sedated her around 8:30 and we were home by 11:30! She did very good, just a little sleepy now. They used the triple sedation method, she kept waking up and squirming so they would give her a little more at a time. She did well :)
Her echo looked good, he said to come back in 6 months again! YES! I love 6 month breaks :)
He said a few things that we were not aware of.
1: her fontan will now be between ages 3 and 4, not 2-3.
2: for a longer life span, to think about moving to sea level elevation post-fontan (NOOOOO!!)
3: post-fontan patients have a hard time having children, getting pregnant is hard for them due to the lower saturation.
This was all news to me! If you don't know me very well, I HATE TO TRAVEL! I have lived within a 5 mile radius my entire life, so has Kurt. The thought of moving makes me ill. He acted like this wouldn't need to be for a while, but maybe when she gets to college she could move. NO! I don't want her away from me, even if she is in college! It made me have quite the meltdown on the way home. I don't think i had realized this is a lifelong thing. I've been telling myself once she has her next surgery, life will be normal. But will it? Will she ever live a normal life? I asked Kurt on the way home "what if noone wants to marry her?" His reply "i'll marry her" then he quickly said .. "that was weird" Ha ha he was just trying to console me then realized that would be weird. One thing is for certain, whoever does marry her will be quite the guy! So that's one worry i can cross of my list!
I was secretly hoping for an earlier fontan. I think the younger she is, the easier it will be. I can't even imagine Jerzi (who is 4) having that surgery right now. She would go nuts. And so would i. Have any of your children had the fontan? What age? How was it? What's your opinon?
Dr. Menons final words today..
"you have to live for today and not worry about the past or the future, you and I could die tomorrow, you can't worry about that" Great advice that we have all heard and know, now it's just trying to live by it :)
Wrap-up! Today was a good day, things are looking good, she is doing great! And the way technology is going, these worries may be silly in 20 years. She may be just fine living in Ogden, Utah having children :)
Her echo looked good, he said to come back in 6 months again! YES! I love 6 month breaks :)
He said a few things that we were not aware of.
1: her fontan will now be between ages 3 and 4, not 2-3.
2: for a longer life span, to think about moving to sea level elevation post-fontan (NOOOOO!!)
3: post-fontan patients have a hard time having children, getting pregnant is hard for them due to the lower saturation.
This was all news to me! If you don't know me very well, I HATE TO TRAVEL! I have lived within a 5 mile radius my entire life, so has Kurt. The thought of moving makes me ill. He acted like this wouldn't need to be for a while, but maybe when she gets to college she could move. NO! I don't want her away from me, even if she is in college! It made me have quite the meltdown on the way home. I don't think i had realized this is a lifelong thing. I've been telling myself once she has her next surgery, life will be normal. But will it? Will she ever live a normal life? I asked Kurt on the way home "what if noone wants to marry her?" His reply "i'll marry her" then he quickly said .. "that was weird" Ha ha he was just trying to console me then realized that would be weird. One thing is for certain, whoever does marry her will be quite the guy! So that's one worry i can cross of my list!
I was secretly hoping for an earlier fontan. I think the younger she is, the easier it will be. I can't even imagine Jerzi (who is 4) having that surgery right now. She would go nuts. And so would i. Have any of your children had the fontan? What age? How was it? What's your opinon?
Dr. Menons final words today..
"you have to live for today and not worry about the past or the future, you and I could die tomorrow, you can't worry about that" Great advice that we have all heard and know, now it's just trying to live by it :)
Wrap-up! Today was a good day, things are looking good, she is doing great! And the way technology is going, these worries may be silly in 20 years. She may be just fine living in Ogden, Utah having children :)
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This is Paul Cardell's CHD video. (I put it at the bottom of the blog, it fits best there..) It is shocking how many people, young and old are dealing with the same type of things we are. Take 9 minutes and watch, these are some of the cutest babies i've seen!! Libbi is about 6 and a half minutes into the video. (make sure you scroll down and pause my music playlist so you can hear his music, he is a pianist, it is very pretty!)





