1 month ago
Thursday, August 18, 2011
Dancing in the rain!
Monday, July 18, 2011
MRI/ECHO June 29
Hmmm... what is going on??
CHEESER!!
Playing in the infamous wating room :)
ALL DONE!! WOOT WOOT!! WHAT A BIG BRAVE GIRL YOU ARE!
Ok so the details of the day go like this. She is doing GREAT!! Dr Menon wants to keep waiting for surgery, saying the bigger she gets the better! I'm ok with that.
I was hoping secretly to get it done before RSV season again. My reasonings?
If she gets sick this winter, it is possible her sats will drop pretty low. This last December she was sick and hovered at about 75 which was really nerve racking. This winter she will go lower, probably resulting in something.. and i really don't want to be in the hospital during RSV.
Soooo.. with mixed emotions, we will do the same thing this winter that we've done the following 2. Stay in. Stay away from church. Be very cautious of illnesses and PRAY she doesn't get sick! (i was hoping to not have to be so strict this year, BUT we'll take it!)
It seems she will be 3, or close to, before her Fontan!
I have to note that Dr Rose (pediatrician) thinks she is the funniest, meanest, most spoiled princess around! HA! I love it! When i took Drew in, he had massive ear infections amongst other things and when i said ' i feel so bad, he didn't even act sick' he replied
"o thats right, he lives with the princess!" He doesn't get time to be sick!! Ha! Poor Drew man..
Lucky Libbi is her new nickname. She amazes us ALL every single day!! :)
CHEESER!!
Ok so the details of the day go like this. She is doing GREAT!! Dr Menon wants to keep waiting for surgery, saying the bigger she gets the better! I'm ok with that.
I was hoping secretly to get it done before RSV season again. My reasonings?
If she gets sick this winter, it is possible her sats will drop pretty low. This last December she was sick and hovered at about 75 which was really nerve racking. This winter she will go lower, probably resulting in something.. and i really don't want to be in the hospital during RSV.
Soooo.. with mixed emotions, we will do the same thing this winter that we've done the following 2. Stay in. Stay away from church. Be very cautious of illnesses and PRAY she doesn't get sick! (i was hoping to not have to be so strict this year, BUT we'll take it!)
It seems she will be 3, or close to, before her Fontan!
I have to note that Dr Rose (pediatrician) thinks she is the funniest, meanest, most spoiled princess around! HA! I love it! When i took Drew in, he had massive ear infections amongst other things and when i said ' i feel so bad, he didn't even act sick' he replied
"o thats right, he lives with the princess!" He doesn't get time to be sick!! Ha! Poor Drew man..
Lucky Libbi is her new nickname. She amazes us ALL every single day!! :)
MRI/ECHO June 29cont.
This must be a nervous habit, she had her finger up her nose ALL day!
Shoving her face full of crackers immediatley after waking up. Shes my kind of girl :)
Heading home!!
'All betta' is her FAVORITE saying! When she gets her bum changed, anytime anyone gets a bandaid.. really for almost anything she says 'all betta' And sooo fitting for her :)
Shoving her face full of crackers immediatley after waking up. Shes my kind of girl :)
'All betta' is her FAVORITE saying! When she gets her bum changed, anytime anyone gets a bandaid.. really for almost anything she says 'all betta' And sooo fitting for her :)
Wednesday, June 29, 2011
Totally unexpected
All went EXTREMELY well for Miss Libbi Lou today! We were expecting surgery soon and Dr said today she is doing SO well that it'll probably be another year, maybe next spring!! Yay for Libs :) 'Live each day in the moment' is our motto..
I will post the details later, just wanted to give a quick update :)
I will post the details later, just wanted to give a quick update :)
MRI and Echo
Bam..reality hit. I like to live in a fantasy world where my kids are all healthy! I also pretend we have lots of money, there are no wordly issues (i don't need food storage, nothing will EVER happen..) my kids are perfect, they never do wrong etc etc. You know what i'm saying? Its easy to live there until a day like today reaches us! It makes me remember that my 'wonderful 2 year old' (we will never call her terrible) and her little body are not perfect. I do fine until the week before an appointment. So most of the time, i do fine. We are lucky to not have WAY more appts and Dr visits. I realize that. But i still struggle. Today is her MRI, we've never had this done before so i'm not sure what to expect. My family kept asking what was going on so i did some reasearch and sent out this in email to them...
Since i myself was unsure of what was going on today, i did some research. I thought you may be interested to read up on whats happening
Thanks :)
What is Cardiac MRI?
Magnetic resonance imaging (MRI) is a noninvasive medical test that helps physicians diagnose and treat medical conditions.
MRI uses a powerful magnetic field, radio frequency pulses and a computer to produce detailed pictures of organs, soft tissues, bone and virtually all other internal body structures. The images can then be examined on a computer monitor, transmitted electronically, printed or copied to a CD. MRI does not use ionizing radiation (x-rays).
Detailed MR images allow physicians to better evaluate various parts of the body and determine the presence of certain diseases that may not be assessed adequately with other imaging methods such as x-ray, ultrasound or computed tomography (also called CT or CAT scanning).
Cardiac MRI imaging is performed to help:
evaluate the anatomy and function of the heart, valves, major vessels, and surrounding structures (such as the surrounding pericardial sac).
diagnose a variety of cardiovascular (heart and/or blood vessel) problems.
detect and evaluate the effects of coronary artery disease.
plan a patient's treatment for cardiovascular problems and monitor a patient's progress over time.
evaluate the anatomy of the heart and blood vessels in children with congenital cardiovascular disease.
Using cardiac MRI, physicians can:
examine the size of the heart chambers and the thickness of the heart wall. (this is a concern)
determine the extent of myocardial (heart muscle) damage caused by a heart attack or progressive heart disease.
detect the buildup of plaque and blockages in blood vessels.
assess a patient's recovery following treatment.
assess the heart anatomy, muscle function, heart valve function and vascular blood flow both before and after surgical repair of congenital cardiovascular disease in children.
Infants and young children usually require sedation to complete an MRI exam without moving. Moderate and conscious sedation can be provided at most facilities. A physician or nurse specializing in the administration of sedation to children will be available during the exam to ensure your child's safety while under the effects of sedation. You will be given special instructions how to prepare your child for the sedation. (Libbi will be under general anethesia for this)
If a child has been sedated or anesthetized for an MRI exam, recovery time ranges from approximately 30 minutes to two hours after the exam is completed
Cardiac MRI allows physicians to examine the structures and function of the heart and major vessels without risks like exposure to radiation typically associated with traditional, more invasive procedures.
So i THINK this is taking place of a cath.. this is a less invasive way to see what Dr needs to see. She may still need a cath if he can't find what he's looking for in this MRI. She will also have an echo following the MRI, shes had many of those before so we're used to that :)
We check in at 930, MRI scheduled for 11, then echo and recovery time. We probably won't meet with the Dr until 1 or 2 i'm guessing.
The hardest part will be when she wakes up and wants her morning 'tippy' Have you ever told Queen Libbi NO? Wish me luck :)
Stay tuned..
Love Libbers
We've had 'scheduling conflicts' so i'm actually not sure if shes getting a echo today or if we are going back later. I never heard back last night. I hope they do both, mainly because i don't want to go back. The main problem was the anethesilogist had to take off after her MRI, meaning she'll have no sedation for her echo. Echo's don't hurt, they just need her to sit very still. I packed a bunch of entertainment and i'm just hoping shes groggy enough still to just lay there. If not, we will go back. They wanted to reschedule to July 13. I requested that we did it this way (with no sedation) instead. I hope i made the right choice. I feel like she's ready to be looked at. Moms instict maybe, or maybe just paraniod mom :) Either way i chose what i did. I hope it was a good choice.
Keep us in your thoughts today!!
Thanks :)
Since i myself was unsure of what was going on today, i did some research. I thought you may be interested to read up on whats happening
Thanks :)
What is Cardiac MRI?
Magnetic resonance imaging (MRI) is a noninvasive medical test that helps physicians diagnose and treat medical conditions.
MRI uses a powerful magnetic field, radio frequency pulses and a computer to produce detailed pictures of organs, soft tissues, bone and virtually all other internal body structures. The images can then be examined on a computer monitor, transmitted electronically, printed or copied to a CD. MRI does not use ionizing radiation (x-rays).
Detailed MR images allow physicians to better evaluate various parts of the body and determine the presence of certain diseases that may not be assessed adequately with other imaging methods such as x-ray, ultrasound or computed tomography (also called CT or CAT scanning).
Cardiac MRI imaging is performed to help:
evaluate the anatomy and function of the heart, valves, major vessels, and surrounding structures (such as the surrounding pericardial sac).
diagnose a variety of cardiovascular (heart and/or blood vessel) problems.
detect and evaluate the effects of coronary artery disease.
plan a patient's treatment for cardiovascular problems and monitor a patient's progress over time.
evaluate the anatomy of the heart and blood vessels in children with congenital cardiovascular disease.
Using cardiac MRI, physicians can:
examine the size of the heart chambers and the thickness of the heart wall. (this is a concern)
determine the extent of myocardial (heart muscle) damage caused by a heart attack or progressive heart disease.
detect the buildup of plaque and blockages in blood vessels.
assess a patient's recovery following treatment.
assess the heart anatomy, muscle function, heart valve function and vascular blood flow both before and after surgical repair of congenital cardiovascular disease in children.
Infants and young children usually require sedation to complete an MRI exam without moving. Moderate and conscious sedation can be provided at most facilities. A physician or nurse specializing in the administration of sedation to children will be available during the exam to ensure your child's safety while under the effects of sedation. You will be given special instructions how to prepare your child for the sedation. (Libbi will be under general anethesia for this)
If a child has been sedated or anesthetized for an MRI exam, recovery time ranges from approximately 30 minutes to two hours after the exam is completed
Cardiac MRI allows physicians to examine the structures and function of the heart and major vessels without risks like exposure to radiation typically associated with traditional, more invasive procedures.
So i THINK this is taking place of a cath.. this is a less invasive way to see what Dr needs to see. She may still need a cath if he can't find what he's looking for in this MRI. She will also have an echo following the MRI, shes had many of those before so we're used to that :)
We check in at 930, MRI scheduled for 11, then echo and recovery time. We probably won't meet with the Dr until 1 or 2 i'm guessing.
The hardest part will be when she wakes up and wants her morning 'tippy' Have you ever told Queen Libbi NO? Wish me luck :)
Stay tuned..
Love Libbers
We've had 'scheduling conflicts' so i'm actually not sure if shes getting a echo today or if we are going back later. I never heard back last night. I hope they do both, mainly because i don't want to go back. The main problem was the anethesilogist had to take off after her MRI, meaning she'll have no sedation for her echo. Echo's don't hurt, they just need her to sit very still. I packed a bunch of entertainment and i'm just hoping shes groggy enough still to just lay there. If not, we will go back. They wanted to reschedule to July 13. I requested that we did it this way (with no sedation) instead. I hope i made the right choice. I feel like she's ready to be looked at. Moms instict maybe, or maybe just paraniod mom :) Either way i chose what i did. I hope it was a good choice.
Keep us in your thoughts today!!
Thanks :)
Tuesday, June 21, 2011
RUNNING
She wears out FAST when running. It breaks my heart. The other day we were swimming and she was having a BLAST, she even went down the slide TWICE! Which resulted in her puking (i think she swallowed water, i don't think it was heart related) but with the swimming, playing, and throwing up it took her a REAL long time to catch her breath.
I had to hold in my tears.
It breaks my heart.
Summer nights
We love summer nights! Its so fun to go out in the backyard and just chill. Libbis favorite 'chill' time is SWINGING! or 'twinging' as she would say :) She has been under the weather so to go out and get some fresh air is NICE! She snuggled up with Minnie and Minnie (hee hee) They are bigger than she is!! Cute girl :)
Subscribe to:
Posts (Atom)
