Anything is possible. You can be told that you have a 90-percent chance or a 50-percent chance or a 1-percent chance, but you have to believe, and you have to FIGHT



Lance Armstrong

Sunday, January 30, 2011

Guess His Birthday!

We are playing a little game.. WHEN WILL THE BABY COME??
Put your guess in the comments and the winner will win a treat!
To be fair, i'm due March 18.
Koy was due Nov 5, his birthday is Oct 21
Jerzi was due June 20, her birthday is June 3
Libbi was due April 13, her birthday is March 20
Happy guessing!
My guess is March 4!
Kurt- March 2
Koy- March 4
Jerzi-February 23
Libbi- February 24

*Only 1 guess per person
**There can be duplicate answers

Thursday, January 27, 2011

Look good!

The echo went very well! He said everything looked good so we'll go back in 6 months! YAY! I have much more to post and even some pics but for now i just wanted to quickly let you know how it went :)

Wednesday, January 26, 2011

Echo tomorrow

Tomorrow is Libbi's echo, it was scheduled for December but she was sick so we rescheduled. We go in at 830, they'll sedate her and it'll probably take about an hour. Then we just wait for her to wake up and head home. Dr. Menon didn't feel it necessary to meet with him after, he will just review it and call me. Honestly the worst part of these is not letting her eat or drink before. She can have normal diet until 3am then just water or juice from 3-7am then nothing after 7am. Should be interesting since she still wakes up for a bottle. I'm hoping for some good luck and little help that she will sleep until 8 when we need to leave! Then she'll only scream for the ride down and not all night long... i think i can handle that. Maybe :)

Should be nothing to worry about, i'm hoping and thinking it'll be a good review and we can hold off on anything for a while.

Stay tuned..

Tuesday, January 18, 2011

Phew!

Dr Menon called this morning (first thing, at 8am! I can't stress how much i love this man!) He has been in India remember? Well he got back and called to check on Libbi. He thinks with her sats being in the high 70's that we can hold off on any MRI, caths or other testing for now. We will still take her for her sedated echo this month but he thinks she is doing just fine! Phew what a relief!! I was not sure how i was going to handle a new baby PLUS Libbi and her issues. Yet another blessing in my book! So for now... life resumes as normal.. if there is such a thing :)

Thursday, January 13, 2011

Insurance gripes

Answer me this.. why in the world would Medicaid ACCEPT Libbi as a disability medicaid recipient (due to her heart condition) and then DENY a cardiac MRI and an o2sat monitor? I don't even get it. They will pay almost $7000 a month for synagis. They will pay if i need to take her in EVERYDAY to get her oxygen tested, but they won't just pay for a silly o2 monitor for us to keep at home? Or a cardiac MRI? Something is seriously messed up here. I really really really wish someone else would accept her so i didn't have to deal with Medicaid. Don't get me wrong, i am grateful we have it, just bugged and confused!!

Also, anyone know how much a cardiac MRI is out of pocket?

2 hours later.. Humbled. Once again.
As i sat here feeling picked on because of insurance, i checked in to see how our buddy Mason did today with his biopsy. Well, he is showing signs of rejection :( They are checking him into PCMC to get some help and i hope and pray it's just a little speed bump in his life. Suddenly, i don't really care about insurance, or medicaid, or money. We will be fine. We are so blessed :)

Tuesday, January 11, 2011

Bad heart??

This morning at breakfast Koy asked
"Mom, how long will you be at the hospital when you have the baby?"
M: Probably only a day or 2
K: Why was Libbi there so long?
M: Because she has a bad heart.
K: Ya, i don't think she does. She runs around, tackles me, laughs and plays with us.
M: I agree Koy, i don't think she does either :)
What a sweet conversation! I love that boy!

All good!

Ok so there was a little mix up, her old hemotocrit was 53-54%, not 47.8%. So now that its 53.2% he's saying it's about the same so no need for oxygen as of now. We are getting a o2 monitor so we can watch her this week at home, then when we go on Tues to see Dr Menon we will have an accurate number for him. With her ferritin being so low Dr Rose thinks she may need to be on an iron supplement, but said to talk with Dr Menon on Tues and see what he thinks. But for now, nothing but monitoring her o2 sat for the week! NO OXYGEN! Yay!!

**FROM WHAT I UNDERSTAND**with her oxygen being all over the place and not knowing what it was for sure, we did the hemotocrit draw to see if it was going up significantly, if it had, it would mean her sats have been consistently dropping since the last draw, which was last March, because it stayed the same it probably means her oxygen has not been that much lower than normal, we are just getting inaccurate readings for whatever reason. Having the monitor at home will be nice because she will be calm and i can also see where she's at when she's asleep.
This is Paul Cardell's CHD video. (I put it at the bottom of the blog, it fits best there..) It is shocking how many people, young and old are dealing with the same type of things we are. Take 9 minutes and watch, these are some of the cutest babies i've seen!! Libbi is about 6 and a half minutes into the video. (make sure you scroll down and pause my music playlist so you can hear his music, he is a pianist, it is very pretty!)

Paul Cardell CHD Video