She has not been herself lately at all. She is grumpy and tired all the time. I have to carry and hold her ALOT, its wearing me out. She is super needy.
Dr Menon actually called me just this morning. I'm still unsure why he called, i think maybe to prepare us for what he is going to say tomorrow. Without me even telling him how she's been acting he said "I think it's time for Fontan. Tomorrow we'll schedule her a cath for January and plan on Fontan in February, is that ok with you?" Um.. what do you say to that. No its not ok!?! I'm teasing, he is always very considerate and compassionate. I love him.
He then asked how she has been and when i told him he said he's not surprised. He said he really feels like it's time.
So.. anxiety starts a day early! This is the worst part of this process. The waiting. I will say 1 positive thing about this, it really makes me appreciate my family during the waiting process. I'm kinder, more tender, more patient and more loving. Its too bad it takes something like this to put things into perspective for me. But i'm sure my family will be glad that i'm a bit more patient!!
3 comments:
we are getting ready for my daughters second heart surgery. i totally understand you when you say it makes you a little more patient and appreciative. i will keep your daughter in my prayers =)
We see Cardiology on Monday Dec. 12. I've already been talking to Dr. Su about how Severin is doing. I know Fontan is sooner then later. I just hope he gets to July then he will be 2 years old. Big breath.... Praying for you today.
Wow, I am way behind! Cath in January and Fontan in February?? Yikes! I can understand the stress. Maybe you will luck out and they can coil some collaterals at her cath, give her a boost in O2 sats and energy, and delay a few more months for the Fontan! If you have any questions as you prepare, let me know!
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